Category Archives: Uncategorized

When you are in the hospital often you notice things. Things that people who don’t spend much time there pay no attention to. For example, most people who come to visit the hospital find themselves staring into the rooms of all the other kids who are there. They walk by looking into each room, focusingContinue reading “Look in our Window”

A friend of mine lost her father a few years ago, and when I would ask her how she was doing she would say fine, as long as I don’t go there. I remember thinking, that was so sad, that she couldn’t even think about her dad. Fast forward a year, when I lost myContinue reading “not going there”

Faith asked me on the way home from church this week, Mom how does god decide what prayers he listens to and what prayers he doest listen to. I’ve been praying really hard that my colon starts working… it makes me sad mom, that god let me down. Go ahead, answer that question. Because IContinue reading “where I find my faith…”

Tonight my head hurts. So does my stomach. I would love to say it was just nerves from papa cutting it a little too close for comfort, but that isnt the case at all. Tonight Faith fell. Fell over her own feet while chasing me to the kitchen because she wanted some corn. She slidContinue reading “The game of my life…”

I used to love being alone. Not all the time, because I am a people person, but I loved going running and I think half the reason I would run so far was because I loved my alone time so much. Now, I dread my alone time. There really isn’t all that much of it,Continue reading “the moments I’m grateful for…”

I love Target. It has almost everything I need and since the divorce it’s where I get most of my clothes. Lately, since all of this with Faith I don’t have Target money anymore. Last week my girlfriend gave me a $50.00 gift card and I was so excited! Yesterday I decided I was goingContinue reading “a lesson about life and Target”

Last week I got some bad news about Faith. She failed a test that is critically important when looking at the recovery of her disease. When the doctor from Cincinnati called to explain it to me, I felt like someone sucked all the air out of my lungs. This entire time we had been dealingContinue reading “Staying Strong?”

In April Faith had an NG tube placed in her nose for tube feeds. Because her digestive system doesn’t work, and hasn’t worked ever in her five years she doesn’t eat nearly what a child her age should be eating. The solution to this tube feeds. She has an IV pole at home and sheContinue reading “this is not normal…”

If you ever have the opportunity to walk around a children’s hospital and just observe whats happening around you, I think it’s a great idea. It does one thing for certain, it puts life into perspective. It makes you realize what you have to be thankful for and just how precious life is. Listen toContinue reading “are we there yet?”