Category Archives: Uncategorized

I’ve been buying hand sanitizer by the gallon for the last 9 years. My children have been able to properly wash their hands, without prompting since they were 5 and 8 years old. My daughter wears a mask in public during flu season and my son schools from home when cases of influenza are high.Continue reading “Damn Rona”

I am not a writer. I don’t enjoy it.  I do it mostly because my therapist and some of Faith’s doctors had suggested it.  I find that most of the time it makes me feel everything, more than I like to feel it. I’ve been contacted on a few occasions about putting my writing intoContinue reading “I’m the person hiding behind the milk”

The specifics of what is happening with the nurses at Faith’s hospital Mott Children’s in Ann Arbor, I haven’t a clue about.  It is not that I don’t care, because I really do.  I think it is a matter of, I am dealing with as much mentally exhausting stuff as I can right now, andContinue reading “The nurses of Mott win, every time.”

I really hate nearly everything about the end of the school year.  The parties, the picnics, the graduations, the salute nights….all of it.  This year was particularly bothersome, as my son graduated from eighth grade.  Now, I’m not that mom that doesn’t want to see my kids grow up….in fact its the opposite, I enjoyContinue reading “Event on Main”

I sat at a bar in my little home town of Dexter with two of my oldest and best friends a few weeks ago, its a new place, but really, an old place.  It’s been there since we were just middle schoolers.  It’s changed names and owners a few times, but it has always beenContinue reading “She’s NOT the sick kid….”

I can’t even tell you how long it has been.  It was on the 27th of October, lots of years ago, the last time his hand was warm.  I was holding it when he started to take his final breaths…..I knew it was happening.  I had just told him where everyone was, and that JamieContinue reading “Meet me at Murdock”

It’s been way too long since I’ve written anything.  Faith loves reading my blog and asks me all the time to please write more. She said she thinks it helps her, she reads some of them over and over and often asks me to read them to her.  Sometimes she cries when she reads them,Continue reading “She will….”

  We’ve been on this journey over six years now….a journey that has been filled with the darkest and lightest days of my life. A journey that has been blessed with the most amazing people god could have ever chosen to accompany us.  Today, one of those people, left us. He’s the person I tell people saved my Faith. So, while I know that thisContinue reading “we learn love DR. TEITELBAUM”

It’s rare disease week.  Actually, rare disease day falls on the last day of February every year…ironically the very next day we celebrate Faith’s Birthday. Faiths disease is rare.  Rare enough that when you try to research it  you will come up pretty empty handed.  You see many times, even in our case on theContinue reading “just one day”